How do I deal with a chronic neurological condition?

Your chronic neurologic condition has affected every area of your life, and now—in spite of receiving optimal therapies—it is getting worse. For patients with stroke, Parkinson’s disease, MS, ALS, Alzheimer’s disease or other dementias, signs of decline may be:

  • Unable to eat or drink
  • Loss of ability to communicate
  • No longer responding to medication
  • Functional status changes, such as blindness or paralysis
  • Depression, anxiety, hallucinations
  • Frequent hospitalizations or trips to the ER
  • Recurring infections, such as UTI or pneumonia
  • Weight loss
  • Assistance required with most activities of daily living

Help is available to complement your existing treatment, manage symptoms and/or to help you have the best end-of-life experience possible. Assistance may include:

  • Pain management
  • Education for families on ways to prevent delirium and agitation
  • Education on how to detect pneumonia, urinary tract or wound infections
  • Identification and treatment of depression, anxiety or hallucinations
  • Remedies for loss of appetite
  • Medicinal and non-medicinal ways to control nausea, vomiting or shortness of breath
  • Prevention of constipation

It may be time to speak to your doctor about realistic treatment options and expected outcomes. Expert care is available for serious or late-stage illness that will improve your quality of life.

Understand how palliative care or hospice can help when facing end-stage neurological disorders.